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About the CAHNZ Trust

The Congenital Adrenal Hyperplasia Support Group of New Zealand is a registered charity offering education, support and resources to individuals and families with children affected by congenital adrenal hyperplasia. Our day-by-day organisation is overseen by five trustees, who have links with a network of doctors and healthcare providers throughout the country and are supported by an advisory group of health professionals. Formed in 1998, CAHNZ is New Zealand’s only registered CAH support group.

Our aims are:

  • To provide information and support to individuals and families affected by congenital adrenal hyperplasia.
  • To liaise and network with secondary healthcare providers and other paraprofessionals for the sharing of information and resources and to promote a greater awareness of how this condition impacts individuals and families of affected children.
  • To monitor local and national health issues and policy matters that have an impact on affected members and their families.
  • To build partnerships which promote research into congenital adrenal hyperplasia, especially within New Zealand.
  • To build partnerships with similar support groups nationally and worldwide.

Membership

Trust members receive the following benefits:

  • Thrice yearly newsletters (download a sample newsletter – pdf file; requires Acrobat Reader, which can be downloaded at this link)
  • Resources (books, videos, articles, wallet cards, etc.)
  • Access to published journal articles
  • Information about New Zealand-based research
  • Phone and email support
  • Contact with other families or adults in their region
  • Support in the early days of diagnosis
  • Practical advice in managing aspects of treatment and care
  • Links with medical professionals and paraprofessionals and other support groups both in New Zealand and worldwide

Membership costs NZ$35 (or Aust$30)/per annum. Registration and donations can be made via cheque or direct bank payment. An enrolment form can be downloaded from this site or enquiries can be emailed to the CAHNZ director at info.CAHNZ@gmail.com.

Contact Us

CAHNZ Trust Director
Phone: 09 421 1616
E-mail: info.CAHNZ@gmail.com

PO Box 66, Waihi, Hauraki 3641, New Zealand